CORDIS Project
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This project aims to create a comprehensive platform for rare disease research by integrating clinical, genetic, and biomaterial data. It seeks to enhance collaboration and streamline access to vital information for diagnostics and therapy development.
Despite examples of excellent practice, rare disease (RD) research is still mainly fragmented by data and disease types.
Individual efforts have little interoperability and almost no systematic connection between detailed clinical and genetic information, biomaterial availability or research/trial datasets.
By developing robust mechanisms and standards for linking and exploiting these data, RD-Connect will develop a critical mass for harmonisation and provide a strong impetus for a global “trial…
UNIVERSITY OF NEWCASTLE UPON TYNE
Partner organizations (coordinator is shown above), with normalized type and CORDIS activity type. Guests see up to 4 partners.
France, Marseille
Type: University / higher education
Activity type: Higher or Secondary Education Establishments
SME: No
Italy, Roma
Type: Research institute
Activity type: Research Organisations
SME: No
Sweden, Uppsala
Type: University / higher education
Activity type: Higher or Secondary Education Establishments
SME: No
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