CORDIS Project
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This project aims to improve diagnosis and treatment of Primary Ciliary Dyskinesia (PCD) through early screening and evidence-based guidelines. It will establish a registry, develop new outcome measures, and conduct trials to optimize therapies, ultimately reducing the disease burden and improving patient quality of li…
Primary Ciliary Dyskinesia (PCD) is a rare genetically heterogeneous disorder which results from dysfunction of motile hair-like organelles (cilia) that results in severe, chronic airways disease.
Due to other cilia-related disease mechanisms several other organ systems like the heart can be affected.
The complexity of the disease phenotype, late diagnosis, as well as lack of evidence based management guidelines contribute to a high burden of disease and cause high health care costs.Therefore, t…
Westfälische Wilhelms-Universität Münster
Partner organizations (coordinator is shown above), with normalized type and CORDIS activity type. Guests see up to 4 partners.
Switzerland, Bern
Type: University / higher education
Activity type: Higher or Secondary Education Establishments
SME: No
CYPRUS UNIVERSITY OF TECHNOLOGY
Cyprus, Lemesos
Type: University / higher education
Activity type: Higher or Secondary Education Establishments
SME: No
United States, Chapel Hill
Type: University / higher education
Activity type: Higher or Secondary Education Establishments
SME: No
Denmark, Hillerod
Type: Public body
Activity type: Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
SME: No
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